Resources
Government
- Canadian’s Drug Agency (formerly CADTH)
Canadian's Drug Agency provides Canada’s health system leaders with independent evidence and advice so they can make informed drug, health technology, and health system decisions, and they collaborate with national and international partners to enhance their collective impact. - Heath Canada
Health Canada is responsible for helping Canadians maintain and improve their health. It ensures that high-quality health services are accessible, and works to reduce health risks. - U.S. Food and Drug Administration (FDA)
The Food and Drug Administration is responsible for protecting America's public health.
Patient Advocacy Organizations
- Canadian Organization for Rare Disorders
CORD is Canada's national network for organizations representing all those with rare disorders. - EURORDIS-Rare Diseases Europe
A unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. - Global Genes
Global Genes, located in California, is dedicated to eliminating the burdens and challenges of rare diseases for patients and families. - National Organization for Rare Disorders (NORD)
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. - Orphanet
Orphanet is a database dedicated to providing information on rare diseases and orphan drugs.
Core Curriculum
Introduction to Patient Advocacy in Canada
This course will introduce students to the core concepts and skills needed to be a professional patient advocate in Canada.
Advanced Curriculum
These courses will provide students with advanced concepts and skills to be professional patient advocate in Canada. The three different themes will focus on three common themes that patient advocacy leaders in Canada generally concentrate on:
- management/leadership
- changing policy, and
- advancing research.
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